…one of the problems with “invisible diseases”. Many people think if they can’t see the pain you are in or each and every one of your symptoms then you must not be that sick.

The “Suicide Disease”, Allison M

Recent ramblings:

Past ramblings:

  • The “Suicide Disease”

    December 26, 2016 by

    When I first received my diagnosis of complex regional pain syndrome I had never heard of this disease. When I first started researching this disease the more frustrated I became. For CRPS being the most painful condition known to the medical community (see pain index below) there is very little research done. No definite known… Read more

  • Gaining just a few more spoons

    November 27, 2019 by

    introducing physical activity has given me MORE SPOONS I had a very green summer this year. Despite feeling a little crummy I was happy to play in the dirt! (One of my favorite things to do thanks to my Grandpa helping conquer my fear of dirt at a young age!!) I’ve found that keeping moving… Read more

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