…one of the problems with “invisible diseases”. Many people think if they can’t see the pain you are in or each and every one of your symptoms then you must not be that sick.

The “Suicide Disease”, Allison M

Recent Ramblings:

Past Ramblings:

  • The “Suicide Disease”

    December 26, 2016 by

    When I first received my diagnosis of complex regional pain syndrome I had never heard of this disease. When I first started researching this disease the more frustrated I became. For CRPS being the most painful condition known to the medical community (see pain index below) there is very little research done. No definite known… Read more

  • Is there really an oil for that?

    April 5, 2019 by

    For those of you new to my blog, I have a rare disease called complex regional pain syndrome (CRPS). My body spends constant pain signals that my brain interprets as real threats instead of “white noise”. This means I, like so many others with my disease, am in constant pain every minute of every day.… Read more

  • March Madness for a Spoonie

    March 22, 2019 by

    “In March I get a break from all the forethought that must go into each activity. I do not have to plan or worry if I need my cane or wheelchair or have a contingency plan. With college basketball March Madness everyone sits on the couch! Watching sports often requires little to no spoons.”

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