How to Benefit from Clinical Trials|Full Webinar|

I had the lovely opportunity to collaborate with FindMeCure Foundation and International Alliance of Patients' Organization (IAPO), both from across the pond in London, to shared my short and sweet clinical trial experience in a webinar. The webinar aimed to bring understanding of the complexity of clinical trials to patients and to let those with…

Window into Clinical Trial Life

My experience being in Grüenthal's neridronic acid clinical trial for diagnosed CRPS patients has been such an adventure. More on the experience here: Being a guinea pig {my clinical trial experience} and the scientific basis for the trial here: Clinical trial. Nothing can prepare you for the expectations that come with participating in a clinical trial. Hope…

Being a guinea pig {my clinical trial experience}

In November of 2017 I was finally accepted into Grüenthal's neridronic acid clinical trial for diagnosed CRPS patients. [More on the discovery and excruciating waiting period here: Clinical trial.] This clinical trial has been a vulnerability of sorts for me. It's been an experience I've put off writing about for awhile. It feels too high stakes.…