Is there really an oil for that?

For those of you new to my blog, I have a rare disease called complex regional pain syndrome (CRPS). My body spends constant pain signals that my brain interprets as real threats instead of "white noise". This means I, like so many others with my disease, am in constant pain every minute of every day.…

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Clinical trial…a year later.

This week I had my last follow-up for my clinical trial. This follow-up marked one year since I had received the¬†phase three clinical trial drug Neridronic Acid. On the drive home I reflected over the last year. When I began the clinical trial I could barely walk most days and used a cane to improve…

How to Benefit from Clinical Trials|Full Webinar|

I had the lovely opportunity to collaborate with FindMeCure Foundation and International Alliance of Patients' Organization (IAPO), both from across the pond in London, to shared my short and sweet clinical trial experience in a webinar. The webinar aimed to bring understanding of the complexity of clinical trials to patients and to let those with…