Gaining just a few more spoons

introducing physical activity has given me MORE SPOONS I had a very green summer this year. Despite feeling a little crummy I was happy to play in the dirt! (One of my favorite things to do thanks to my Grandpa helping conquer my fear of dirt at a young age!!) I’ve found that keeping moving…

Is there really an oil for that?

For those of you new to my blog, I have a rare disease called complex regional pain syndrome (CRPS). My body spends constant pain signals that my brain interprets as real threats instead of "white noise". This means I, like so many others with my disease, am in constant pain every minute of every day.…

Clinical trial…a year later.

This week I had my last follow-up for my clinical trial. This follow-up marked one year since I had received the phase three clinical trial drug Neridronic Acid. On the drive home I reflected over the last year. When I began the clinical trial I could barely walk most days and used a cane to improve…