Gaining just a few more spoons

introducing physical activity has given me MORE SPOONS I had a very green summer this year. Despite feeling a little crummy I was happy to play in the dirt! (One of my favorite things to do thanks to my Grandpa helping conquer my fear of dirt at a young age!!) I’ve found that keeping moving…

Latest Comforts

Living with CRPS is uncomfortable to say the least. Having the most painful condition known to the medical community and being in pain constantly is taxing. Distraction and doing hobbies I enjoy can help take my mind off the pain. Here's a list of my current comforts. These comforts have been especially important to me…

How to Benefit from Clinical Trials|Full Webinar|

I had the lovely opportunity to collaborate with FindMeCure Foundation and International Alliance of Patients' Organization (IAPO), both from across the pond in London, to shared my short and sweet clinical trial experience in a webinar. The webinar aimed to bring understanding of the complexity of clinical trials to patients and to let those with…