Ways for Spoonies to Not Watch from the outside

The biggest struggle with chronic illness is the isolation. With the constant medication, the invisible and visible symptoms, the many doctor appointment, the fatigue...oh and the PAIN! It can feel like no one relates. No one understands. It's hard to not feel bitter. To not feel like you're watching life from behind a window. It's…

Diagnosis {part 2}

Many times during my diagnostic period I felt like a human pin cushion, having blood vial after blood vial drawn. I felt like the process was never going to end. I want to encourage anyone going through this to not give up hope. There is a light at the end of the tunnel and the…

Window into Clinical Trial Life

My experience being in Grüenthal's neridronic acid clinical trial for diagnosed CRPS patients has been such an adventure. More on the experience here: Being a guinea pig {my clinical trial experience} and the scientific basis for the trial here: Clinical trial. Nothing can prepare you for the expectations that come with participating in a clinical trial. Hope…