A very spoonie Christmas

Christmas is exhausting even if you are not chronically ill. Here are my tips for surviving the holidays without using all your spoons! * Accept help! With decorating, food prep, hosting, gift shopping, rides...just ALL of it! Now is not the time to let your pride waste spoons. * Schedule USPS to pick up your…

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Clinical trial…a year later.

This week I had my last follow-up for my clinical trial. This follow-up marked one year since I had received the phase three clinical trial drug Neridronic Acid. On the drive home I reflected over the last year. When I began the clinical trial I could barely walk most days and used a cane to improve…

Please tell me how I’m not handicapped

Please tell me now I'm not handicapped and can't use the disabled parking. I DESERVE my handicapped parking that comes with my disability tag. (No, I didn't steal it from my grandma.) But since I look "healthy" go ahead and tell me I'm not handicapped... Please tell me how I'm not handicapped when it takes…