A very spoonie Christmas

Christmas is exhausting even if you are not chronically ill. Here are my tips for surviving the holidays without using all your spoons! * Accept help! With decorating, food prep, […]

Clinical trial…a year later.

This week I had my last follow-up for my clinical trial. This follow-up marked one year since I had received the phase three clinical trial drug Neridronic Acid. On the drive […]

Meal Kits

Grocery shopping, cooking, and baking are some of the privileges the healthy take for granted. My family always gathered in the kitchen and I still took it all for granted, […]