10 CRPS facts of life

1) You are in pain every second of every day even when you look healthy. 2) The opioid crisis is effecting your quality of life. It’s punishing pain patients for […]

A very spoonie Christmas

Christmas is exhausting even if you are not chronically ill. Here are my tips for surviving the holidays without using all your spoons! * Accept help! With decorating, food prep, […]

Clinical trial…a year later.

This week I had my last follow-up for my clinical trial. This follow-up marked one year since I had received the phase three clinical trial drug Neridronic Acid. On the drive […]